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Scientific topics: Data management

and Keywords: Rare Diseases

and Target audience: Data stewards

4 materials found
  • Lecture, Presentation, Training materials

    HemaFAIR Lecture 8 - Introduction to Federated Analysis of FAIR Data

    • beginner
    FAIR data Data management Open science Data reuse Data sharing European research projects FAIR principles Federated Analysis Federated Data HemaFAIR …
  • Lecture, Presentation, Training materials

    HemaFAIR Lecture 7 - Ethical, Legal and Social Implications (ELSI) and Data Protection for Rare Disease Data

    • beginner
    FAIR data Data management Open science Data reuse Data sharing ELSI Ethics European research projects FAIR principles HemaFAIR …
  • Lecture, Presentation, Training materials

    HemaFAIR Lecture 6 - Introduction to HL7 FHIR Standard

    • beginner
    FAIR data Data management Open science Data reuse Data sharing ERDRI European research projects FAIR principles HemaFAIR Metadata …
  • Lecture, Presentation, Training materials

    HemaFAIR Lecture 5 - Introduction to European Rare Disease Registry Infrastructure (ERDRI)

    • beginner
    FAIR data Data management Open science Data reuse Data sharing ERDRI European research projects FAIR principles HemaFAIR Metadata …
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The training portal for the photon & neutron community is supported through the European Union's Horizon 2020 research and innovation programme, under grant agreement 857641, 823852, the Horizon Europe Framework under grant agreement 101129751, and the consortium DAPHNE4NFDI in the context of the work of the NFDI e.V. under the DFG - project number 460248799.